Are Thyroid Medications Lifelong?
Most physicians and endocrinologists will say that in Hashimoto’s, hypothyroidism is irreversible and ends with complete thyroid cell damage, leading to a lifelong requirement of thyroid hormone medications. However, this isn’t true! It has been reported that thyroid function spontaneously returned in 20% of patients with Hashimoto’s.
These individuals will return to normal thyroid function even after thyroid hormone replacement is withdrawn. (1,2)
How?
Studies show that once the autoimmune attack ceases, the damaged thyroid has the ability to regenerate. Thyroid ultrasounds will show normal thyroid tissue that has regenerated, and the person will no longer test positive for TPO Antibodies. (3)
This regeneration may often be missed in adult patients because they are assumed to have hypothyroidism for life and antibodies and ultrasounds are not usually repeated after the initial diagnosis.
Most cases of hypothyroidism in the United States, Europe, and Australia are caused by Hashimoto’s, yet many people do not know that they have it.
In addition to the ultrasound and TPO antibodies, a test can be done by administering TRH (Thyroid Releasing Hormone), which will cause an increase in T3 and T4 if the thyroid has recovered. This test will help determine if the person can be weaned off thyroid medications safely. (2)
While this information is readily available in the scientific literature, most physicians do not attempt to administer TRH in an effort to see if patients could be weaned off of their thyroid medications.
What Else Are They Missing?
When I was diagnosed with Hashimoto’s in 2009, I was told that there was nothing I could do other than take medications for the rest of my life, in increasing doses, as my thyroid continued to burn itself out…
Conventional medicine has yet to recognize the impact of lifestyle modifications that can slow down, halt or reverse thyroid antibodies. While a lot of this information is available in the scientific literature and some progressive naturopaths, chiro’s, nutritionists and alternative medicine practitioners have begun implementing it with great results, these experts are often unattainable to the average Hashimoto’s patient due to their extremely high costs.
Additionally, skepticism often keeps patients from reaching out to alternative practitioners. I can’t blame them…I too have been taken advantage of, swindled, and promised the world by unethical practitioners who prey on sick people who just want to feel better.
This is why I, as an established clinical pharmacist, decided to take on lifestyle interventions as a personal mission. I wanted to not only get better myself but to also bring this information into the mainstream to help others with Hashimoto’s. I hope that my background and experience will encourage people to take a second look.
People are recovering from Hashimoto’s every day. Some of them are recovering by accident and some on purpose. I have been researching lifestyle interventions for Hashimoto’s for the past several years and hope that this blog, my books (Hashimoto’s: The Root Cause and Hashimoto’s Protocol), and your own research will give you the tools to find and treat the root cause of Hashimoto’s so that you too can get better—on purpose!
Please subscribe to the blog and like my Facebook page for updates.
I wish you all the best in your healing journey!
PS. You can also download a free Thyroid Diet Guide, 10 Thyroid friendly recipes, and the Nutrient Depletions and Digestion chapter for free by going to www.thyroidpharmacist.com/gift. You will also receive occasional updates about new research, resources, giveaways and helpful information.
References
- Nanan R, Wall J. Remission of Hashimoto’s Thyroiditis in a Twelve-Year-Old Girl with Thyroid Changes Documented by Ultrasonography. Thyroid. 2010;20(10):1187-1190. doi:10.1089/thy.2010.0102.
- Davis T. Pathogenesis of Hashimoto’s thyroiditis (chronic autoimmune thyroiditis). Uptodatecom. 2017. Available at: https://www.uptodate.com/contents/pathogenesis-of-hashimotos-thyroiditis-chronic-autoimmune-thyroiditis. Accessed September 7, 2017.
- Takasu N, Komiya I, Asawa T, Nagasawa Y, Yamada T. Test for recovery from hypothyroidism during thyroxine therapy in Hashimoto’s thyroiditis. The Lancet. 1990;336(8723):1084-1086. doi:10.1016/0140-6736(90)92567-2.
Stephanie W. says
Thyroid Root Cause says
Shirley J says
Sharon says
I live in Rolling Meadows, a N.W. suburb of Chicago
Izabella Wentz says
Sharon says
Have your book and umteen articles you’ve posted on your website.
Thank you for all you do for us.
Sharon says
Have your book and umteen articles you’ve posted on your website.
Thank you for all you do for us.
Sharon says
Have your book and umteen articles you’ve posted on your website.
Thank you for all you do for us.
Eliza Gouveia says
I was diagnosed with hypothyroidism 7 years ago after having a mild heart attack caused by severe tachycardia and an irregular heartbeat and my daughter was diagnosed with hypothyroidism 4 years ago. Both of us were experiencing a lot of stomach issues at the time we were diagnosed as well as a large range of other health issues. Both of us were treated with levothyroxine after being diagnosed. we went in and had our thyroid levels checked recently neither one of us has been taking our thyroid medication for quite some time due to an issue with the insurance company and some financial issues. We both tested at normal levels the only symptoms we have had has been a bit is tiredness and brain. We both have lost over a 100 pounds each since being diagnosed without any change in our diets as well. It seems to me that thyroid problems are caused by an imbalance of some sort Within the microbiome. From what I have read it seems as though the microbiome regulates nearly everything in our bodies. Everything we eat or drink affects our microbiome. If we become low in a vitamine or mineral for a long enough time our microbiome becomes off balance and greatly affects our health. The only thing different my daughter and I did was began taking a whole food multivitamin supplement, probiotics, and liquid ionized plant-based Trace mineral supplement. We began doing so after being seen by a naturopathic doctor and told we were low in several vitamines and iron deficiency anemia. We began taking the supplements approximately 8 months prior to finding out our thyroid levels are normal. It seems as though the only type of doctors that even test for proper vitamin and mineral levels are naturapathic doctors. I believe that is the first thing that should be tested when a person becomes I’ll. It seems as though it is the root cause of nearly all illnesses. This is slightly off subject but Since my husband began taking the three supplements ( he figured he might as well because he saw no harm un doing so ) his arthritis that was beginning to cripple his hands and would wake him from pain in his shoulders and back has not only stopped waking him in pain but has actually reversed some in his hands. I hope this information is helpful to you and others. God bless.
Dr. Izabella Wentz says
Eliza – thank you so much for sharing your families journey! What an amazing story! I am so happy to hear you found a practitioner, are all taking charge of your health and feeling so much better. I hope you will keep me posted on your continued progress. <3
Connie says
Dr. Izabella says
Connie – thank you for following this page. I highly recommend that you work with a functional medicine clinician to be a part of your own health care team. It’s an entire medical specialty dedicated to finding and treating underlying root causes and prevent serious chronic disease rather than treating individual disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
CLINICIAN DATABASE
https://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://ifm.org/find-a-practitioner/
Debbie says
Thank you
Debbie
Dr. Izabella says
Debbie – thank you for following this page. I highly recommend that you work with a functional medicine clinician to be a part of your own health care team. It’s an entire medical specialty dedicated to finding and treating underlying root causes and prevent serious chronic disease rather than treating individual disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
CLINICIAN DATABASE
https://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://ifm.org/find-a-practitioner/
craig says
Soynia Durham says
Dr. Izabella says
Soynia – thank you for following this page. I highly recommend that you work with a functional medicine clinician to be a part of your own health care team. It’s an entire medical specialty dedicated to finding and treating underlying root causes and prevent serious chronic disease rather than treating individual disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
CLINICIAN DATABASE
https://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://ifm.org/find-a-practitioner/
Heather Burkhardt says
Izabella Wentz says
Excess iodine can cause more damage to the thyroid…
Kaz says
Mark Jennings says
Izabella Wentz says
Tiffany says
Izabella Wentz says
Adina says
Thank yju. Adina
Pamela says
PaMela Barraclough says
caren lynn says
Izabella Wentz says
Ashly says
Mary says
Mary mo says
Tara says
Anita says
Margie Neace says
Izabella Wentz, PharmD says
Dawn says
Izabella Wentz says
Kellie says
Izabella Wentz, PharmD says
Rachel says
liz says
Linds says
Izabella Wentz, PharmD says
Thank you for reaching out to me. I recommend doctors that are trained in functional medicine. They approach the body as a whole, and not just the thyroid hormones. We are currently building a list of doctors, but I don’t have one I can recommend. A good place to start is the Institute of Functional Medicine. Here is a blog post we wrote about the functional medicine approach: https://bruno-michael-wentz.dev01.rmkr.net/1/post/2013/10/functional-medicine-approach-to-the-thyroid.html
irena says
Izabella Wentz, PharmD says
Welcome, and I’m sorry to hear about your daughter. Hang in there, it can get better, but you will need to take her health into your own hands. It took me three years to figure this stuff out, but I now have my life back and am trying to create awareness as much as possible so others don’t have to suffer as long as I did. I share a ton of information about my story, what’s going on in Hashimoto’s, helpful strategies and ways to overcome the condition on my website and have a patient guide available that can help you help her.
Lina says
lala says
Jan Pitts says
Ruth says
Kirsten says
Suzanne says
I am deeply inspired your story, and thank you so much for sharing your journey. I have Hashimoto’s, and, speaking of ‘root causes’, my recent stool testing came back positive for Streptococcus Salivarius bacterial overgrowth (around 30%). My doctor has suggested this could be the cause of my Hashimoto’s (though I also have the Herpes Virus).
I would be very appreciative of what you owuld suggest for treatment, and how I can address my gut issue? My docotr has suggested GAPS, but I wonder if there are other options.
Would be most grateful for any advice you could share.
Lorraine Dodd says
Brandi Edmiston says
Michelle says
Judie says
kate kolka says
Anne says
If milk seems to cause gastointestinal issues but hard cheeses do not (at least clinically).should dairy be eliminated from a diet that is already gluten and soy free? Also, can nightshade veggies, in your experience, cause gastrointest. issues? Made Ratatoille last night so not sure if veggies or milk to blame, Also, would love a recommendation for a doctor that treats children with Hashimotos.
Judy Gendron says
Luverne says
Thanks for any suggestions!
Susan says
Lolita says
rebecca says
Yolanda says
Jody says
20 years ago I was put on thyroid meds because I was always complaining of being tired, my doctor checked my thyroid levels and they were border line.. he put me on thyroid meds to see if this would help with the fatigue.. however … we were unaware at that time I actually had cervical cancer and that was why I was always tired…I had surgery to remove the cancer and felt better not 100% but better … I am currently on 88mg of synthroid. I am allergic to the generic brands…I have always had a lot of bloating, constipation ad bouts of being tired. I need to loose 10/15 lbs. which has been difficult I will lose a couple of pounds but seem to maintain or gain..Also have no motivation at times (currently on Wellbutrin which helps )..I have some symptoms of hypo some of hyper… I really would love to be off all the meds and feel normal …is it possible to get off the thyroid meds… I was told you can hurt yourself if you just discontinue the meds… and the doctors say you cant get off at all..no hope thru the doctors… what do you think? who could I see … I live in Georgia. is there people who have gotten off all thyroid meds and the thyroid functioning on its own. a cure ?
Anne says
Elke Dandridge says
Elke
Natali says
Arlene Fields says
Courtney says
Roxanne Marble says
Tara Dorroh says
I am 56 year old female,with a very active life. I am wondering since I recently made lifestyle changes you suggested if I even need meds? After being diagnosed 15 years ago with Hashimoto’s, my thyroid meds as of last few weeks seem to have me in hyper mode.
I was having hypo symtoms a few months ago and dr increased my synthroid from 50 mcg (been on 50 mcg for all 15 years) to 75 mcg…..in the midst of the increase I was making the lifestyle changes, last week he added T3 ( 25 mcg synthetic) to my T4. For the first 3 days I thought it was a miracle! I felt good, my body seemed relaxed, I slept well…then boom, shot me right into hyper like I was on speed.
The only thing I took this morning was 1/4 of the T3 and within 20 minutes sent my heart racing. Now I am wondering if maybe I don’t need anything???? What to do, what to do?
I just had all my lab work done last week but it was done right before I started T3, and of course everything is in ‘normal’ range.
Dr did call in Armour but I haven’t taken it yet. I know some Hashimoto patients do better on Armour than synthetic T3 and T4. Don’t know what to do…..
Right this minute I feel better because the only meds I have had today were 1/4 of 25 mcg T3 which doesn’t last that long in your system…..what would you do?
carla curtis says
carla curtis says
anna says
Oliver says
Very informative article, would love to see a follow-up on this one.
I just got my lab tests back after going 100% gluten-free, taking Vitamin D, Selen, Zinc, Mg, Carnosine and going on T4+10mcg T3. For the first time TSH in lower third: 1.3 and TPO 8 (previously 60) = Euthyroid!
My doc told me my gland has little tissue left. I plan to go back in 3 months for ultrasonic testing – should I bring this up and then start considering to lower my dosage if the tissue grows back? There is too little information available out there.
Dr. Izabella Wentz says
Oliver- Thank you so much for your support! Thyroid tissue can regenerate, but the rate at which it does is not always predictable. Thus, some are able to stop the autoimmune attack on their thyroid and regain normal thyroid function. Others can reduce the dose of medications, and others will need to stay on the medications indefinitely. I’m currently working on some protocols to help with tissue regeneration.
Reversing Hashimoto’s means different things to different people. For some, it means a reduction in symptoms and for others it means a reduction in your antibodies. I had both. Here a few articles that might be helpful for you 🙂
REVERSING AUTOIMMUNITY? AND THE PERFECT STORM
https://bruno-michael-wentz.dev01.rmkr.net/articles/reversing-autoimmunity-and-the-perfect-storm/
HASHIMOTO’S SELF CARE, GETTING AND STAYING IN REMISSION
https://bruno-michael-wentz.dev01.rmkr.net/articles/hashimotos-self-care
si says
Dr. Wentz,
I’m sure thyroid regeneration is definitely possible. For many years I’ve had Hashimotos hypothyroiditis. I was told I would take thyroid meds the remainder of my life. Throughout 2016 I began having reactions to every thyroid medication prescribed. The most severe symptoms were intense heart palpitations, extreme exhaustion, weakness, sadness & dehydration from sweating. Doctors aren’t listening. As an older patient, who listens to my body, I began cutting the dosage a little at a time but the symptoms remained. Eventually I stopped my thyroid med altogether & one by one the symptoms have subsided. I hope I never have to take thyroid med again and for now I’m listening to my body, eating well, exercising, supplements as need, prayer always. Thank you for your article.
Dr. Izabella Wentz says
Si- Thank you so much for your support! Not everyone will need every single supplement! In fact, I believe that most nutrients should come from the diet, this is why I always list food sources for most of the nutrients, vitamins, minerals and probiotics that are depleted in Hashimoto’s in the book and on the blog. However, some may require/prefer supplements and the supplements on the website are a resource for those that do. I recommend getting tested for deficiencies to determine your need for a supplement as instructed in the book and blog. I also don’t recommend starting multiple supplements all at once. I recommend starting one at a time and then adding another a week or so later once it has been confirmed that the first supplement is not causing any harm.
I do have a full supplements chapter in my book. Have you checked it out? Not everyone should be taking every supplement and the book will help uncover your root cause. This will help you figure out your supplementation.
Hashimoto’s Root Cause
http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
Hashimoto’s Protocol
https://smile.amazon.com/Hashimotos-Protocol-Reversing-Thyroid-Symptoms/dp/006257129X/ref=sr_1_1?ie=UTF8&qid=1482698453&sr=8-1&keywords=Hashimoto%27s+Protocol
Juliette Dumit says
MY 10 year old daughter was diagnoise with Hashimoto. I myself developed Hashimoto after giving birth to my daughter. I always knew something wasn’t right with my daughter when her body temperature would fluctuate (suddenly she was cold and at night she is always hot). She is always developing skin rashes and a foggy mind. I took her to a children’s Endro center in NJ and the Doctor said she needed no meds at the moment. I left there hopeless and with no answers to help my daughter. Is there any Holistic Doctor in NJ/NY for my child.
Dr. Izabella Wentz says
Juliette – thank you for following this page, and my heart goes out to you and your daughter.
I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
WHAT TYPE OF DOCTOR SHOULD YOU SEE IF YOU HAVE HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/what-type-of-doctor-should-you-see-if-you-have-hashimotos
10 THINGS I WISH MY ENDOCRINOLOGIST WOULD HAVE TOLD ME
https://bruno-michael-wentz.dev01.rmkr.net/articles/10-things-i-wish-my-endocrinologist-would-have-told-me
CLINICIAN DATABASE
http://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://www.functionalmedicine.org/practitioner_search.aspx?id=117
Julie says
Hello,
I am French.
My 21 year old daughter.
I myself developed Hashimoto after giving birth to my daughter. My 21 year old daughter.
Is it possible that dental amalgams to mercury are the cause?
Is there an article on thyroid and dental fillings?
Thank you.
Dr. Izabella Wentz says
Julie – thank you for following this page. My heart goes out to you and your daughter. <3
Here is some information you may find interesting.
Three things MUST be present in order for autoimmunity to occur...
1. Genetic predisposition
2. Environmental triggers
3. Intestinal permeability (leaky gut)
Developing autoimmunity is like a three-legged stool, all of these factors must be present for autoimmunity to occur! When you remove one of these, you can prevent or stop autoimmune disease. While we can't change genes, if we know the trigger, we can remove it and we can heal the gut.
REVERSING AUTOIMMUNITY AND THE PERFECT STORM
https://bruno-michael-wentz.dev01.rmkr.net/articles/reversing-autoimmunity-and-the-perfect-storm/
IS HASHIMOTO’S HYPOTHYROIDISM GENETIC
https://bruno-michael-wentz.dev01.rmkr.net/articles/is-hashimotos-genetic
Heidi says
Hello,
I read your book last year, thank you for the valuable information. Since then I’ve been gluten free, dairy free, and no sugar of course . And I’ve been eating Paleo for several months, up to the present moment.
I’ve visited an alternative doctor, and 2 reputable naturopaths, who could help my condition only slightly. They replaced Levothyroxine by other more natural ” medications”/ thyroid supplements, and the results were not successful. To the contrary, my TPO when up, after it had been reduced from a 1000 (when discovered ) to 300. It went up again to > 900. Thyroid is still imbalanced. Now I am back to Levothyroxine, and waiting to see how this is going to help in at least balancing it conventionally.
So far, I have been feeling miserable and frustrated. The question is what to do next? How can I know what the root cause of my Hashimoto is, when I did all you recommended?
I would appreciate further recommendations, and thank you in advance!
Dr. Izabella Wentz says
Heidi – I wrote my new book to provide protocols to deal with ongoing health issues created by Hashimoto’s. Have you read it yet?
HASHIMOTO’S PROTOCOL
https://www.amazon.com/Hashimotos-Protocol-Reversing-Thyroid-Symptoms/dp/006257129X/ref=asap_bc?ie=UTF8
These articles can give you some ideas about where to look for your root causes:
THE MANY TRIGGERS OF HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/the-many-triggers-of-hashimotos
ROOT CAUSES
https://bruno-michael-wentz.dev01.rmkr.net/articles/6-different-hashimotos-root-causes
ARE OXALATES THE ROOT CAUSE OF YOUR THYROID CONDITION?
https://bruno-michael-wentz.dev01.rmkr.net/articles/are-oxalates-at-the-root-cause-of-your-thyroid-condition
DAVE’S HASHIMOTO’S ROOT CAUSE: MOLD!
https://bruno-michael-wentz.dev01.rmkr.net/articles/daves-hashimotos-root-cause-mold
HOW THE DOSE OF YOUR THYROID MEDICATION CAN UNCOVER YOUR ROOT CAUSE
https://bruno-michael-wentz.dev01.rmkr.net/articles/the-dose-of-your-thyroid-medication-can-uncover-your-root-cause
I also highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/1/post/2013/10/functional-medicine-approach-to-the-thyroid.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://www.functionalmedicine.org/practitioner_search.aspx?id=117
You may also like to check out the doctors that other patients recommend on this list:
CLINICIAN DATABASE
http://www.thyroidpharmacistconsulting.com/clinician-database.html
Helene Pitchon says
Once you have your thyroid burned out are you condemned to a life of weight gain and an impossibility to lose weight?
This has ruined my life.
Dr. Izabella Wentz says
Helene – thank you for following this page. Most thyroid conditions result from the immune system attacking the thyroid because the immune system is out of balance. Even when the thyroid is taken out surgically, is ‘dead’, or treated with radioactive iodine the autoimmunity still persists in most cases. Many people will have their thyroids removed, and will develop new autoimmune disorders such as Lupus, Rheumatoid arthritis, etc. The immune system just finds a different target. We need to re-balance the immune system to prevent this (sometimes the autoimmunity can be reversed as well). The gut determines your immune system. With the exception of discussing proper thyroid medication dosing, the majority of my website and my book focuses on balancing the immune system. The info I present is based on my own research and journey for overcoming my autoimmune thyroid condition.
Hashimoto’s Root Cause
http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
Hashimoto’s Protocol
thyroidpharmacist.com/protocol
IS HASHIMOTO’S A SURGICAL DISEASE
https://bruno-michael-wentz.dev01.rmkr.net/articles/is-hashimotos-a-surgical-disease
K says
Hi Im from New Zealand. need help please. I have been on levo 50mg for 5 yrs. All my tsh t3 t4 levels are currently normal.
Except my thyroid anti-globulin is 332iu/ml. Normal range is less than 116iu/ml I have read.
I have been very unwell for almost 6 months now and seen countless practitioners who dont have the answers. Ive been experiencing hot flashes, sweat, adrenal type rushes, anxiety, dizziness, feeling imbalanced when standing, fast and slow heart rate and pressure in my sinuses. I dont feel taken seriously and now feeling lost as what to do next.
I was recently reffered onto an Endo but they wont see me and are only sending a ‘letter of care’ to follow at home in the post instead. I do not feel this to be sufficient. I just feel brushed aside. It has already cost almost a couple grand searching for answers.
Now im interested in coming off levo potentially and self healing.
Can you please help me?
Dr. Izabella Wentz says
K – thank you for following this page. My heart goes out to you! 🙁
I highly recommend that you work with a functional medicine clinician. It’s a whole medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
WHAT TYPE OF DOCTOR SHOULD YOU SEE IF YOU HAVE HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/what-type-of-doctor-should-you-see-if-you-have-hashimotos
10 THINGS I WISH MY ENDOCRINOLOGIST WOULD HAVE TOLD ME
https://bruno-michael-wentz.dev01.rmkr.net/articles/10-things-i-wish-my-endocrinologist-would-have-told-me
CLINICIAN DATABASE
http://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://www.functionalmedicine.org/practitioner_search.aspx?id=117
K says
Ps. I am hypothyroid (underactive) after giving birth 5.5 yrs ago. I am interested in the idea of thyroid correcting itself and retraining it to produce hormone etc.
Shelley says
Hello Dr Wentz,
Do you know of a good doctor for Hashimoto’s in Las Vegas?
Thank you.
Shelley
Dr. Izabella Wentz says
Shelley – thank you for following this page. I highly recommend that you work with a functional medicine clinician. It’s an entire medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic disease rather than disease symptoms.
FUNCTIONAL MEDICINE APPROACH TO THE THYROID
https://bruno-michael-wentz.dev01.rmkr.net/articles/functional-medicine-approach-to-the-thyroid
CLINICIAN DATABASE
http://www.thyroidpharmacistconsulting.com/clinician-database.html
FIND A FUNCTIONAL MEDICINE CLINICIAN
https://www.functionalmedicine.org/practitioner_search.aspx?id=117
M says
Hi Dr. Wentz,
My daughter was recently diagnosed with Graves Disease. Two years ago I had her blood tested for lead. It was a level 5. Last October is was 3.8. This past May, it went down to 1.6. My thoughts are that the lead has interfered with her thyroid function. My question is, do you think her thyroid function will return to normal and antibodies will go down once the lead is out of her system?
Per the suggestion of a functional medicine doctor that I am working with, I have eliminated dairy and gluten from her diet and have introduced more fresh fruits and vegetables along with foods that will naturally eliminate lead from the body.
Dr. Izabella says
M – thank you for following this page. Sounds like you are on the right path! 🙂 Please, understand that due to liability issues, I am unable to answer specific medical questions. I recommend you refer back to your practitioner, who is familiar with your daughters health history.
M says
Hi Dr. Wentz,
I am sorry, I forgot to mention that my daughter is nine years old.
Sergio says
Dear Mrs Wentz,
this article gives me hope, thank you. My TPO antibodies are back to normal range while TGB antibodies are still a bit elevated. Is this proof enough that I should do the ultrasound to check my thyroid or should my tsh also becoming lower and lower to demonstrate that my hormone replacement dosis is now too high?
Dr. Izabella says
Sergio Most people feel best with a TSH of around 1 or lower and with a Free T4 and Free T3 in the upper half of the range. It is expected that your TSH will be very suppressed when optimal on NDT medication. Every six weeks is usually a good schedule for testing your thyroid hormones.
These are the recommended labs from my book, page 32.
RECOMMENDED THYROID FUNCTION TESTS
* TSH
* TPO Antibodies
* Thyroglobulin Antibodies
* Free T4
* Free T3
* Reverse T3 (Optional)
Have you read my book, Hashimoto’s The Root Cause? Here’s the link in case you’re interested:
http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
Hashimoto’s Protocol:
thyroidpharmacist.com/protocol
Beate Setzer says
my daughter , age 15, was diagnosed with Hashitoxicosis in March 2017. Tsh suppressed, T3 and T4 elevated, Thyroid antibodies high,
We had been following a whole food diet, eliminating bread and other high carbohydrate food, since about October 2016.
She had no energy, could not run or climb stairs, could not concentrate. I am a doctor, a GP, and started supplementing with B vitamins, omega 3, Vit C and others , Zinc, iron, Selenium, magnesium.
Vitamin B helped, but she craved food to the extent that I considered needing a lock for the fridge. She gained weight, but said that she was always hungry, until one day she said that the mussels I had given her had filled her up and satiated her!
We had excluded a brain tumour with an MRI scan and a visit to the neurologist.
I realised then that she had Pica, a craving for deficient nutrients. She craved sweet potato and spinach, even told me that the occasional sip of red wine helped for her hunger. In September this year she lost all her body hair( Alopecia Universalis) but started re-growing all her hair about 2 weeks later. Her Ferritin was 69 when I checked 2 weeks ago and her head hair fell out again 2 weeks ago. We are using a green smoothie in the morning and increasing magnesium even more has had an impact on her constipation.I had to remove both her big toenails as they had stopped growing and the remaining hard part was digging into the flesh and causing swelling and pain of the toes and the whole foot. She walked barefoot for 2 weeks while the toes were healing.
Timeline of her illness was Asthma as a young child(atopic family history, older brother died from Asthma when she was 3) , HPV vaccination, EBV infection shortly after, leaving her sick for 6 months, during this period there was severe stress at school with bullying. Her gut problems started after this , which were investigated under GA( colonoscopy, gastroscopy) and several biopsies which were all normal. the thyroid problem was diagnosed subsequently in April 2017.The ultrasound showed an inflamed thyroid, TSh was less than 0.01., T3 7.75, T4 18.4 in April, Thyroglobulin antibodies18.3, Thyroid peroxidase antibodies 91.5.
The antibodies have halved since and the T3, T4, TSh are currently normal.
Your book has been really helpful, but the exact supplements are not available in South Africa.
My daughter is still not well, but we are persevering.
Dr. Izabella says
Beate – thank you for sharing. My heart goes out to you and your daughter. Most autoimmune conditions have common root causes, and a lot of times the things that are recommended for one autoimmune condition will help with others. Conditions that I have found to respond really well to the Hashimoto’s protocols have been rheumatoid arthritis, lupus, Celiac disease, irritable bowel syndrome, eczema, asthma, Graves’, premature ovarian failure, psoriasis, Alopecia Areata, and Sjogrens. I have also seen the protocols help with Fibromyalgia, chronic fatigue syndrome, PCOS, as well as Type 2 diabetes, Crohn’s, and Ulcerative colitis. You might find these articles helpful.
MTHFR
https://bruno-michael-wentz.dev01.rmkr.net/articles/mthfr-hashimotos-and-nutrients/
ARE YOUR ADRENALS SABOTAGING YOUR HEALTH?
https://bruno-michael-wentz.dev01.rmkr.net/articles/are-your-adrenals-sabotaging-your-health
You also might want to check out my books.
Hashimoto’s Protocol
https://www.amazon.com/Hashimotos-Protocol-Reversing-Thyroid-Symptoms-ebook/dp/B01HXK6GVQ/ref=sr_1_1?ie=UTF8&qid=1506463784&sr=8-1&keywords=hashimotos+protocol+izabella+wentz
Hashimoto’s Root Cause
http://www.amazon.com/gp/product/0615825796?ie=UTF8&camp=1789&creativeASIN=0615825796&linkCode=xm2&tag=thyroipharma-20
Christine says
When I was 12 years old I was so weak and sick, I couldn’t get out of bed–they tested me for everything–they thought it was Mono…then the diagnosis came back–Hashimoto’s disease…I got prescribed synthroid and within 2 weeks of taking the pills I was back to my old energetic self…I took the medication every day for 7 years…levels tested every year…seemed normal, the doc said its because I was taking my medication and that obviously I needed it. Then when I was 19 and in my first and second years of University, I stopped getting my prescription filled–I was too busy–working FT as well as kids and classes. After 2 years I was feeling kind of sluggish so went to the doc to telling her I hadn’t taken my pills in 2 years and she freaked out–had me tested and she said my hashimotos was GONE–magically! Its been 11 years now–I am 30 and levels are still fine they say…I didn’t change my diet but I did begin exercise….I also had lyme disease which explains the fatigue… good luck yall…
Dr. Izabella says
Christine – thank you for sharing what has worked for you. Here is an article you might find interesting.
LYME AND HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/lyme-and-hashimotos
🙂
Wendy says
I’ve had Hashimoto’s since 2013 and you’re right my doctors never had any of this information. I cant believe, as you said, that the data is so outdated. Such a helpful post!
Dr. Izabella says
Wendy – thank you for your support! I’m looking forward to seeing your progress here. 🙂
Laura says
Hello. Thank you for providing all of this information. Do you know of a specialist near the Omaha, NE region that you would recommend talking with about possible thyroid recovery?
Patricia says
I’m tired of just being told about medication! I know about the medications but I’m glad I read your blog for this kind of information. Holistic medicine is the way to go! I wish more people understood that like you do. Thank you, I’m ready to start empowering myself and work to recover some of my own thyroid function
Dr. Izabella says
Patricia – you are very welcome! You might also be interested in my books:
Hashimoto’s Root Cause
http://amzn.to/2DoeC80
Hashimoto’s Protocol
http://amzn.to/2B5J1mq
Maureen says
I found your post after having an interesting experience. I have always been very bad at consistency in taking my levo. I maybe take it 3/4 of the time. Because of this reason I track it on a daily habit list. I have been feeling amazing for a long while. I would say for about two years (good sleep, got married, good job, low stress) and I recently looked at my list and it had been 5 days since I took my meds. I didn’t have any of the symptoms I remembered from when I was diagnosed 7 years ago with hashimotos. I am going to continue to stop the medication for now. I actually feel that I’m less “wound up” and anxious since I stopped taking it. I’d like to get my TSH, T3/T4, and antibodies checked to see if my thyroid has recovered spontaneously. How long should I wait to get the test to see what my “new baseline” is? Is there anything else you would recommend me testing?
Dr. Izabella says
Maureen – thank you for sharing your journey. I am happy to hear you are feeling well. <3 I recommend you contact your practitioner. It is never advisable to stop taking your medications, or alter your dosages, without the advice of your practitioner. T4 thyroid hormone medications have a half-life of about 1 week. This means that when a person stops taking them, the amount of the hormone activity in their body, from the medication, will decrease by about 1/2 each week. For T3 medications, this half-life is only about 1 day. Generally, within three weeks (or a few days for T3), most of the hormone will be out of the body. This could result in increased symptoms, an increase in the autoimmune attack on the thyroid, and extra stress on your body and the thyroid. Thyroid hormones affect every organ, tissue and cell in the body. Appropriate medication management will allow you to recover from the effects of hypothyroidism, giving you the energy, vitality and support to continue working on optimizing your health. Please do not change your medications without speaking to your doctor first.
WHICH THYROID MEDICATION IS BEST?
https://bruno-michael-wentz.dev01.rmkr.net/articles/which-thyroid-medication-is-best/
TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
https://bruno-michael-wentz.dev01.rmkr.net/articles/top-11-things-you-need-to-know-about-thyroid-medications/
Kelli wasicek says
Hello…I’m on 90mg of Armour. I don’t have hashimoto’s. All the blood tests except iron are with in normal range. I have high blood pressure and take losartan 50mg. Do you still recommend I read your book. I weight 260 and am unable to lose any more weight. I’ve seen several doctors and they all tell me…well your labs are normal it’s just genetics. Feeling frustrated.
Dr. Izabella says
Kelli – thank you for reaching out. <3 I am so sorry you are struggling. I understand how frustrating it an be. Most conventional physicians use the TSH test to determine if one has a thyroid disorder and to dose thyroid medications. However, this test can often times be misleading, as levels of circulating hormones may fluctuate at different times, such as in Hashimoto’s, where the person affected may fluctuate between highs and lows.
Additionally, when scientists first set the “normal” ranges of TSH for healthy individuals, they inadvertently included elderly patients and others with compromised thyroid function in the calculations, leading to an overly lax reference range. This resulted in people with underactive thyroid hormones being told that their thyroid tests were “normal,” based on this skewed reference range.
WHAT TO DO IF YOUR TSH IS NORMAL AND YOU ARE ANYTHING BUT
https://bruno-michael-wentz.dev01.rmkr.net/articles/what-to-do-if-your-tsh-is-normal-and-you-are-anything-but/
Here are the tests you need for diagnosis. Most endocrinologists don’t run them all so you will have to request them. Make sure to request a copy of your labs as well.
TOP 10 THYROID TESTS AND HOW TO INTERPRET THEM
https://bruno-michael-wentz.dev01.rmkr.net/articles/top-6-thyroid-tests/
Butch says
I also have had some recovery of thyroid function. My TSH had been increasing over the last 20 years after I was diagnosed with mild hypothyroidism (1998) and I eventually ended up on 200mcg levothyroxine. Two years ago my TSH began to go very low (around 0.001). Oddly, though, my free T3 was still in the normal range and I was told to remain on the same dose. Notably, I was having problems with high heart rate (tyically in the low 90s which I was told was still “normal”). Last year I asked for a recheck and TSH was still very low, and was told to go from 200 to `100mcg by a new doctor. He wouldn’t check free T3 though, and since I didn’t know about thryoid regeneration (family doc didn’t mention it) and assumed suddenly decreasing my dose might be harmful, I refused until I saw an endocrinologist. He said the thyroid in Hashimoto’s can regenerate function even if only 2 percent of the thyroid was left unaffected. He recommended trying 112mcg, and rechecked TSH/T3/T4 six weeks later, which were mid-normal range on the reduced dose. He wants to see me in a year. Heart rate returned to the 70s. However, since my heart rate has been increasing again, I’m wondering if more frequent checking is warranted though and that thyroid function may be continuing to improve.
Dr. Izabella says
Butch – thank you for sharing your journey. I am sorry to hear you have had to go through all of this. Most people feel best with a TSH of around 1 or lower and with a Free T4 and Free T3 in the upper half of the range. It is expected that your TSH will be very suppressed when optimal on NDT medication. How much thyroid replacement therapy is needed is unique and different for each person, so it’s important to work with a functional medicine practitioner or a doctor, who can closely monitor your dosage and your progress. Every six weeks is usually a good schedule for testing your thyroid hormones. Here is a research article which might help further:
TOP 10 THYROID TESTS FOR DIAGNOSIS
https://bruno-michael-wentz.dev01.rmkr.net/articles/top-6-thyroid-tests/
james says
Izabella, I live in the Southern New Hampshire area. I am a firm believer in what you are saying. Hashimoto’s diagnosed for years. Never feel right on any replacement meds. Do you know of any support i can find in near me?
Dr. Izabella says
James – thank you for reaching out. I have removed your last name. There are quite a few options for thyroid medications. In my experience, what works for one person may not work for another. If your doctor will not prescribe the medication which you are looking for, ask your local pharmacist for doctors in your area who prescribe the medication you are looking to try. Have you read these articles?
WHICH THYROID MEDICATION IS BEST?
https://bruno-michael-wentz.dev01.rmkr.net/articles/which-thyroid-medication-is-best/
TOP 11 THINGS YOU NEED TO KNOW ABOUT THYROID MEDICATIONS
https://bruno-michael-wentz.dev01.rmkr.net/articles/top-11-things-you-need-to-know-about-thyroid-medications/
HOW THE DOSE OF YOUR THYROID MEDICATION CAN UNCOVER YOUR ROOT CAUSE
https://bruno-michael-wentz.dev01.rmkr.net/articles/the-dose-of-your-thyroid-medication-can-uncover-your-root-cause/
HOW TO GET ACCURATE LAB TESTING WHEN TAKING MEDICATIONS
https://bruno-michael-wentz.dev01.rmkr.net/articles/how-to-get-accurate-lab-tests-when-taking-thyroid-medications/
Claire says
Hello Dr. Wentz,
I have a question for you. I am trying to determine what has caused my TPO antibodies to decrease. Does taking levothyroxine bring down the number of antibodies, or does following the AIP protocol and taking supplements bring down the antibody count? I am doing both, so I am trying to determine what is causing this effect. What have you noticed from your experience with Hashimoto’s?
Dr. Izabella says
Claire – thank you so much for reaching out. I am happy to hear you are taking charge of your health! <3 IgG subclass antibodies have a half-life of 21 days and stick around on immune cells for about two to three months. They need constant “reminders” in the form of an antigen so that their production continues. If the antigen is removed, the antibodies will go away as well. The time period required for them to completely forget about the antigen and disappear is nine to twelve months.
The following things need to be in place for the antibodies to forget about the thyroid:
1) The thyroid stops expressing TPO.
2) The thyroid cells are not damaged and able to regenerate.
3) There are no substances that look like TPO (glandulars, gluten, infections, other triggers).
4) The immune system is balanced.
5) The autoimmune cells are confused by a decoy.
Some of these requirements are quick and easy, and others will take some time ...
The thyroid will stop expressing TPO for two reasons. One of them is thyroid destruction, which we do not want; the other is thyroid suppression. Thyroid suppression is induced by limiting iodine and taking a thyroid supplement to bring TSH to 1 mIU/L or so. This can take up to three months
In the case of autoimmune conditions, traditional and alternative medicine practitioners may focus on rebalancing the immune system (i.e. steroids and immune-modulating drugs used in traditional medicine, or else herbs, supplements, or acupuncture used in alternative medicine).
While this approach may be helpful for taming the immune system in the short term or overcoming autoimmune flares, it is often a temporary solution and the immune system may become imbalanced again once the medications,acupuncture, and herbs and supplements are stopped if the underlying issue that lead to the immune system imbalance is not addressed. Thus we can say that immune modulation treats only the symptoms, and not the root cause.
As we can’t change genes, our approach to addressing the root cause of Hashimoto’s is threefold:
1) Reducing triggers
2) Eliminating intestinal permeability
3) Providing the body with nutrients to regenerate
Identifying and eliminating triggers and toxins will likely take a few weeks to a few months. Providing the thyroid with the nutrition needed to help rebuild and detoxify will likely take three to six months.
Rebalancing the immune system by addressing the root cause of autoimmunity (intestinal permeability, gut dysbiosis, infections) may take one to three years, but in the meantime, we can modulate the immune system and throw our thyroid antibodies a decoy. Hope this helps!
https://bruno-michael-wentz.dev01.rmkr.net/articles/hashimotos-and-tpo-antibodies/
Claire says
Thank you so much for your prompt and informative response, plus the link to your TPO antibodies article! I was diagnosed with H’s at a subclinical level and currently I’m on a very low dose of synthetic hormone. I plan to stay on the AIP protocol for the rest my life (I enjoy eating this way), so I’m hoping I can get to the point where I no longer need the medicine. (Besides, it’s causing my eyebrows to fall out.) Your blog post gives me a lot of hope. Thanks for writing and sharing!
Dr. Izabella Wentz says
Claire – you are very welcome! Please keep me posted on your progress. <3
Tina says
Hi Dr. Wentz, I’ve been seeing an integrative medicine specialist and working on correcting my Hashimoto’s. After several months I was told that my T4 was still low and I needed to see my primary care. The primary care prescribed thyroid medication and I have been taking the lowest dose of levothyroxine for about 6 weeks. I just ordered your 90-day book and after reading this article it mentioned weaning off of thyroid meds. Is it safe since I’ve only taken them for 6 weeks to just stop and try your 90-day approach?
Dr. Izabella says
Tina – thank you so much for sharing your journey with me. <3 I'm so happy to hear you have found a practitioner. It is never advisable to stop taking your medications, or alter your dosages, without the advice of your practitioner. T4 thyroid hormone medications have a half-life of about 1 week. This means that when a person stops taking them, the amount of the hormone activity in their body, from the medication, will decrease by about 1/2 each week. For T3 medications, this half-life is only about 1 day. Generally, within three weeks (or a few days for T3), most of the hormone will be out of the body. This could result in increased symptoms, an increase in the autoimmune attack on the thyroid, and extra stress on your body and the thyroid. Thyroid hormones affect every organ, tissue and cell in the body. Appropriate medication management will allow you to recover from the effects of hypothyroidism, giving you the energy, vitality and support to continue working on optimizing your health. Please do not change your medications without speaking to your doctor first.
Linda says
Hello. Your book is my bible and I have been following your hashimotos procol for a few years now. Even before that I have been very conscious of my diet since being diagnosed with graves in 2006. I refused the medicine from day one, prefering to heal naturally. In later years I was diagnosed with Hashimotos, vitilgo and fibromyalgia. My determination has paid off. This year my T3, T4 and TSH have finally been tested in the normal range and my thyroid antibodies had continually gone down. But they have now frozen and although no longer extremely high, they are still elevated. Today I rang my old dentist. I got one root canal treatment in 1999. In January 2006 I was diagnosed with Graves and in August 2006 that root canalled tooth’s filling failed and needed to be capped. My new dentist wants to pull my old root canal. He refuses to do them them and he makes a living removing root treated teeth. I have spent so much money but will do it if I feel it will definatly finalise my healing journey. xrays and scans show no infection in the treated root. He says it dosn’t always show on scans. I am conflicted. Any new evidence, reading material or testimonals to help me decide.
Dr. Izabella Wentz says
Linda – thank you for reaching out and sharing your journey. <3 Dental procedures, such as tooth extractions or root canals, can lead to infections which must be resolved in order to feel completely better. I highly recommend a Biological dentist. Biological dentistry is a branch of dentistry that looks at the connection between oral care and the health status of the rest of the body. While most traditional dentists focus only on “rescue care” rather than prevention, biological dentists try to prevent health problems that may originate from exposure to certain procedures and materials. To find a biological dentist in your area, visit the International Academy of Oral Medicine & Toxicology’s website at http://www.iaomt.org for a listing. Here are some articles you might find interesting:
DENTAL TRIGGERS OF HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/dental-triggers-hashimotos/
CARRIE’S DENTAL PROCEDURE TRIGGERED HER HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/carries-dental-procedure-triggered-her-hashimotos/
DENTAL AMALGAMS & HASHIMOTO’S
https://bruno-michael-wentz.dev01.rmkr.net/articles/dental-amalgams-silver-fillings-root-cause/
Lola says
Hello!
I got your book “Hashimoto’s Protocol” in April 2022… after several months of extreme fatigue and low body temperature. My antibodies were at 313.
I followed your protocol religiously and felt (and still feel) improvement. Recently I now and then fall off the wagon and eat some forbidden food… but it seems my gut recovered as much as I seem to be able to do this RARELY!
I noticed recently, that I can do something which I could not during my entire life (57 years): sweat when doing running/cycling/workout.
I suppose this as well is a sign of recovery? It feels tremendously healthy!!!
Thank you for all you do. I will dive over winter time into the advanced protocols!
Lola
Dr. Izabella Wentz says
Lola – Thank you so much for sharing your journey with me! I’m so glad you are starting to feel better. It’s a great sign that you are sweating! I do hope you will keep me posted on your continued progress.❤️
Sanjay Pillay says
I was diagnosed with graves disease (hyperthyroidism) 20+ years ago and given RAI (twice) and now Hypothyroid and on levothyroxine. I am a man from New Zealand and wondering if you know of any doctors who can treat me with more than the required dosage of thyroxin?
Dr. Izabella Wentz says
Senjay – thank you for reaching out. I highly recommend that you work with a functional medicine clinician. It’s an entire medical specialty dedicated to finding and treating underlying causes and prevention of serious chronic diseases, rather than disease symptoms. If you cannot find a Functional Medicine practitioner in your area, it is possible to work with an overseas practitioner remotely via Skype or some other online video platform. Here’s a database link which might help: https://bruno-michael-wentz.dev01.rmkr.net/database-recommended-clinicians/
Fran says
Hi Izabella,
Just like you I am a healthcare practitioner and working on introducing healthy lifestyle modifications concomitantly. My biggest challenge is to minimize work-related stress due to irregular work schedules. Quick question: I understand that you started off with being on thyroid medication due to a series of severe symptoms, as mentioned in your blog. So am curious to know how has all of your lifestyle changes (and use of supplements) helped you manage Hashimoto’s disease effectively. Did you eventually wean yourself off thyroid medications for good or have you found a stable dose that has kept you symptom-free for years?
Dr. Izabella Wentz says
Fran – Thank you so much for following. Yes, I am still on thyroid medication. I will be updating my story soon so stay tuned. When interventions are in place and the body is able to get into a balanced state, some people are able to eventually wean off of, or lower their dose, of thyroid medication, but the goal is putting your symptoms into remission.